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The State Of Things
Jan. 30th, 2025 09:23 amAlright. So, two days ago I decided I was going to have a Laundry Day and wash all my bedding for the first time in forever. You have to understand that my bed butts up right against the window, so pillows and blankets are always all over the windowsill, but when I pulled everything off... I found MOLD, an INCH THICK, growing along almost my entire windowsill. And I was like. What the fuck. It had even gotten into the curtains, so it had been there a while.
The only thing I could do at that point was take the curtains down and proceed with my plan to do aaaaaaall the laundry, and then clean the mold up the best I could with rubbing alcohol to kill as much as possible. It looks much better now, but the plan is to wash down the windowsill with rubbing alcohol once a week from now on to keep it gone. I THINK it happened because of the humidity from the axolotl tank, but I could be wrong.
Anyway, then I went online and looked up the symptoms of mold toxicity and I HAVE EVERY SINGLE ONE OF THEM. LITERALLY EVERY ONE. It explains the "cold" I've had for the last while, the sinus issues, the cough, the constant frog in my throat and even the rash I had on my left ankle, though that's nearly gone now. SO, LIKE MAYBE. NOW THAT IT'S GONE. SOME OF THESE THINGS WILL ALSO GO AWAY? One can only hope. I just can't believe it took me so long to notice the MOLD GARDEN growing right next to where I sleep. JFC.
Today was supposed to be my appointment with Dr. K, but yesterday morning Lori (the receptionist) called and asked if I could go in that afternoon instead, something had come up and she had to cancel today's appointment. I didn't have anything else on the go, really, so that was fine with me. *shrug*
I didn't ask her about the mold toxicity, which I probably should have, but we did talk about a lot of things. I asked about the possibility of Dupixent for my lungs because I AM DESPERATE TO BREATHE AGAIN, but she said we should revisit that after my PFT at the hospital at the end of February, which makes sense.
I also asked about Zepbound, which is a weight loss drug that apparently has great results and is unrelated to the other weight loss treatments on the market, it's an entirely different medicine. But Zepbound only just came over to Canada (and was rebranded under a different name that I can't remember), so it's not covered yet, and apparently all the companies with weight loss drugs are being stingy with their samples now, where they used to give them out willy-nilly. So, I have to wait until it's covered or they start giving out samples, but that's another note in my chart.
I told her that my ADHD meds needed adjusting and she was like "well you ARE on the lowest possible dose" so she upped my Vyvanse dose, which is good. Vyvanse is also good for weight loss AND chronic pain control at higher doses, so we're going to look into that and how I'm doing on the new dose at my next appointment.
We talked about my chronic, CRIPPLING back and joint pain, and she ordered some bloodwork to check for arthritis markers before we really do anything about it. The problem is, in the meantime, I'm CONSTANTLY taking OTC painkillers with drugs in them that are bad for my NAFLD, and my liver is taxed enough as it is. But I understand where she's coming from, she doesn't want to prescribe me medications without a proper diagnosis. She DID, however, give me a magnesium balm that is apparently good for joint pain? idk, I'll give it a try.
Speaking of diagnosis, though, I asked her WHY I needed to be diagnosed with PCOS AGAIN when I was ALREADY diagnosed with it in my 20's, and why THIS TIME they insisted on a vaginal ultrasound when LAST TIME they diagnosed me with just a regular one. First she was like "idk that's just how they do it nowadays BUT YOU CAN REFUSE" and I was like "yes I know I did just that." But then she goes "wait, you were ALREADY diagnosed with PCOS??" And I was like :| "YES. Would you like to know the measurements of my ovaries at the time I was diagnosed?" lol. So she looked back in my chart and bingo! There it was!
Since the PCOS impacts so heavily on my liver (and my everything else), I should have continued to be on the birth control pills after I had the hysterectomy 4... 5?? years ago, but the gynecologist at the time cancelled my prescription because I no longer had a uterus so obviously I no longer needed meds to control my periods. EXCEPT. THEY LEFT MY OVARIES IN AND FUNCTIONAL AND STILL WREAKING HAVOC ON MY ENTIRE BODY. In the last year they have done SO much damage. =/
Dr. K just clicked a button and put me back on the birth control pills, and I'm hoping to pick them (and my Vyvanse) up this afternoon when Mom and I are out and about. Then we did the usual trick-or-treat bag full of free sample medications (Dayvigo and Breztri this time) to keep me going for a while. (I've had to up my Dayvigo dose from a half tab a night to a full tab a night so I was running out a lot quicker than before.)
I DO want to talk to her about my back pain/spasms again next time I'm in because I'm pretty sure that's my scoliosis and not arthritis, but all in all it was a good visit and we got a lot accomplished. I'm SUPER jazzed about the birth control pills and the bump up in my Vyvanse. :D
The only thing I could do at that point was take the curtains down and proceed with my plan to do aaaaaaall the laundry, and then clean the mold up the best I could with rubbing alcohol to kill as much as possible. It looks much better now, but the plan is to wash down the windowsill with rubbing alcohol once a week from now on to keep it gone. I THINK it happened because of the humidity from the axolotl tank, but I could be wrong.
Anyway, then I went online and looked up the symptoms of mold toxicity and I HAVE EVERY SINGLE ONE OF THEM. LITERALLY EVERY ONE. It explains the "cold" I've had for the last while, the sinus issues, the cough, the constant frog in my throat and even the rash I had on my left ankle, though that's nearly gone now. SO, LIKE MAYBE. NOW THAT IT'S GONE. SOME OF THESE THINGS WILL ALSO GO AWAY? One can only hope. I just can't believe it took me so long to notice the MOLD GARDEN growing right next to where I sleep. JFC.
Today was supposed to be my appointment with Dr. K, but yesterday morning Lori (the receptionist) called and asked if I could go in that afternoon instead, something had come up and she had to cancel today's appointment. I didn't have anything else on the go, really, so that was fine with me. *shrug*
I didn't ask her about the mold toxicity, which I probably should have, but we did talk about a lot of things. I asked about the possibility of Dupixent for my lungs because I AM DESPERATE TO BREATHE AGAIN, but she said we should revisit that after my PFT at the hospital at the end of February, which makes sense.
I also asked about Zepbound, which is a weight loss drug that apparently has great results and is unrelated to the other weight loss treatments on the market, it's an entirely different medicine. But Zepbound only just came over to Canada (and was rebranded under a different name that I can't remember), so it's not covered yet, and apparently all the companies with weight loss drugs are being stingy with their samples now, where they used to give them out willy-nilly. So, I have to wait until it's covered or they start giving out samples, but that's another note in my chart.
I told her that my ADHD meds needed adjusting and she was like "well you ARE on the lowest possible dose" so she upped my Vyvanse dose, which is good. Vyvanse is also good for weight loss AND chronic pain control at higher doses, so we're going to look into that and how I'm doing on the new dose at my next appointment.
We talked about my chronic, CRIPPLING back and joint pain, and she ordered some bloodwork to check for arthritis markers before we really do anything about it. The problem is, in the meantime, I'm CONSTANTLY taking OTC painkillers with drugs in them that are bad for my NAFLD, and my liver is taxed enough as it is. But I understand where she's coming from, she doesn't want to prescribe me medications without a proper diagnosis. She DID, however, give me a magnesium balm that is apparently good for joint pain? idk, I'll give it a try.
Speaking of diagnosis, though, I asked her WHY I needed to be diagnosed with PCOS AGAIN when I was ALREADY diagnosed with it in my 20's, and why THIS TIME they insisted on a vaginal ultrasound when LAST TIME they diagnosed me with just a regular one. First she was like "idk that's just how they do it nowadays BUT YOU CAN REFUSE" and I was like "yes I know I did just that." But then she goes "wait, you were ALREADY diagnosed with PCOS??" And I was like :| "YES. Would you like to know the measurements of my ovaries at the time I was diagnosed?" lol. So she looked back in my chart and bingo! There it was!
Since the PCOS impacts so heavily on my liver (and my everything else), I should have continued to be on the birth control pills after I had the hysterectomy 4... 5?? years ago, but the gynecologist at the time cancelled my prescription because I no longer had a uterus so obviously I no longer needed meds to control my periods. EXCEPT. THEY LEFT MY OVARIES IN AND FUNCTIONAL AND STILL WREAKING HAVOC ON MY ENTIRE BODY. In the last year they have done SO much damage. =/
Dr. K just clicked a button and put me back on the birth control pills, and I'm hoping to pick them (and my Vyvanse) up this afternoon when Mom and I are out and about. Then we did the usual trick-or-treat bag full of free sample medications (Dayvigo and Breztri this time) to keep me going for a while. (I've had to up my Dayvigo dose from a half tab a night to a full tab a night so I was running out a lot quicker than before.)
I DO want to talk to her about my back pain/spasms again next time I'm in because I'm pretty sure that's my scoliosis and not arthritis, but all in all it was a good visit and we got a lot accomplished. I'm SUPER jazzed about the birth control pills and the bump up in my Vyvanse. :D
